All of our families have incredible stories to tell. They have achieved wonderful things; many have battled against health complications; all have proved inspirational. Here are a selection of stories about some of the children who come to the group and life with Down’s syndrome – including two of our teenagers with DS writing about themselves…
Nina (age 14)
“I have Down’s syndrome – so what? I still have friends and family and a boyfriend. I still like fashion, music, make up and news. I like rock music and go to concerts. I go to school with my friends and have made friends at mainstream school…”
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Christina (age 14)
“My name is Christina. I am 14. I live at home with my mum, dad and older sister. We have four pet chickens. I called mine Snow White because she is white with black feathers around her neck. I go to high school. I love going to school to see my friends…”
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Tilly – told by her mum, Sara
“We were offered screening for Down’s syndrome – due to my high BMI and the position of our baby the normal NT measurements could not be assessed. But we turned it down, saying that no matter what the result was it would make no difference…”
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Amelia – told by her mum, Jo
“I was 13 weeks pregnant when the call came. The call that changed the way I look at the world. The call that shaped my future. The one that told me I had a 1:138 chance of having a baby with Down’s syndrome. We were offered a termination or CVS…”
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Jordan – told by his mum, Tracy
“When we were told just after he was born that our son had Down syndrome, I can honestly say the bottom dropped out of our world. Why? Because it wasn’t what we expected and it wasn’t what we wanted – or so we thought…”
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